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Autism Awareness Month Day 2

April 3, 2016 7:47 am

World Autism Awareness Day. Everyday is a day to spread awareness but we can also join in with the rest of the world that marks a particular day each year to drive it a bit more. I spent the day with so many special characters on the Autistic Spectrum at my local charity. If people say children with Autism are all the same in this or that… Please reconsider. I was with several children on the spectrum today and not one child is anything like the other. Yes they all have a similar diagnosis but the spectrum is so wide…

Autism Awareness Month Day 1

April 1, 2016 9:18 pm

  Kicking off Autism awareness month with our own superstar’s birthday. I don’t think it is any coincidence that Nae-Nae was born on 1st April. She tells me she is a born prankster and she’s not wrong. She was sent to make us laugh again. I faced a very low time before she was born but when she was born she was just perfect but I didn’t realise how perfect she would be for our lives until much later. Our day kicked off in the usual way on 1st April, waking up Nae-Nae to sing to her and give her…

Excited just before Christmas? A day in the life parenting Autism while climbing my mountains

December 23, 2015 8:52 am

Christmas is a jolly time but is that the case for everyone? We absolutely love Christmas here. It’s a time when we celebrate Jesus coming to the earth. Yeah I here the critics saying he wasn’t born on 25th December but it’s the day that has been selected to remember that glorious day. However the run up to Christmas break isn’t jolly for us all. I won’t lie I get quite nervous around the last weeks of the school term cos I imagine that something is going to kick off. In many schools this is the week that pretty much…

Why me? A day in the life parenting Autism while climbing my mountains

December 6, 2015 4:35 pm

  Why me? Why not? This might offend some people initially cos it might appear that I am celebrating tragedy or trivialising pain or accepting that wrong things that occurred were meant to occur and are ok but nah not that at all. I’m not going to rejoice and say I was meant to be abused because it made me who I am! Heck no!!! But I can say as a result of my healing from the pain it caused, my life is better and I am who I am today as a result of my healing. I saw something…

Hello – A day in the life parenting Autism while climbing my mountains

November 27, 2015 9:41 pm

There are two calls in life that as a parent and a believer you expect to get. One call I’m praying won’t come for many, many years but it could be tomorrow, next week, next month, next year. No one knows. The other call I pretty much expect everyday and if it doesn’t come it’s a massive relief. What are these calls? Yeah that’s right the call to heaven and the call from your children’s school. I’ve spoken to the Lord and asked that although the call to heaven will definitely come, if possible I would like to complete some…

Putting things into perspective – A day in the life parenting Autism while climbing my mountain

November 19, 2015 5:49 am

It’s been a while… Grief has a way of taking you out of things or changing your perspective or priorities on things. None of which completely applies here lol. I just couldn’t write words on a page. Every time I thought to write the hand didn’t reach the keyboard or the phone. My mind would just go blank and I got a feeling in my stomach that made it uncomfortable. However as usual music was my thing so I could do spontaneously songwriting where I just sat at the piano or a with guitar in my hands and pressed record…

Ready or not… A day in the life parenting Autism while climbing my mountains

September 20, 2015 8:32 am

Sometimes we have concerns about our kids doing certain things or going to certain places because we feel they might not cope with it or be ready, when actually they are more than ready. You know that thought you have when a new term starts and you aren’t sure if they are ready or will cope with SATs exams, going on a residential trip without you for 5 days, going abroad without you, starting big school whether primary or secondary or just doing some things they haven’t been able or wanted to do before. We teach our kids that All…

Back to School and Work Yay! A day in a life parenting Autism while climbing my mountains

September 13, 2015 7:47 am

Back to school is probably a phrase lots of parents enjoy the sound of.  Back to work is what we all dislike. However… at the end of this summer the ‘Back to School’ phrase made me happy but not for the usual reasons and ‘Back to work’ didn’t disturb me either. OMG I said that out loud! During the summer break we experienced a very traumatic event as we lost someone really really close in extremely tragic circumstances. Due to the complications around the death and police involvement there’s a long delay for the funeral which makes things so much…

Don’t give up, make adjustments and revisit later – A day in the life parenting Autism while climbing my mountains

August 5, 2015 8:57 am

Often in our lives there are things that we attempt with our children that do not always work out as we planned first time around. I have found that’s it’s not because they can’t do it or won’t ever do but sometimes reasonable adjustments need to be made to make it possible. Sometimes people in general are rigid about the way things are done or should be done but we don’t actually consider our rigidity and expect others to conform to that approach but at the same time the world views those on the spectrum as rigid. One thing I…

Believe and show them, they will believe – A day in the life parenting Autism while climbing my mountains

July 29, 2015 8:00 pm

I’m a firm believer in all things are possible and I try to show that to my children in all that I do. Yes things may be hard sometimes but if we never try something we won’t know if we are able to conquer it or not or whether we will like it or not. Living with my beauts there’s always new things to try or revisit and we celebrate every success even the smallest of things. This might sound yucky but Nae-Nae calls one of us (either MrJK or I) after she has been to the toilet when we are at…